Adolescent Health Transition Project - Like other transitions in life, Health Transition is a process, not a one-time event. The earlier teen, young adults and their families start getting ready, the smoother the Health Transition process will go.
American College of Physicians – Pediatric to Adult Care Transitions Initiative – Each set of tools was required to include at least the three minimum elements described below, which have been customized to include disease/condition-specific elements that are an important part of the transition process for emerging adults in learning self-care. The disease/condition-specific sets of tools found below on this page contain the following customized elements, at a minimum:
- Transition Readiness Assessment
- Medical Summary/Transfer Record
- Self-Care Assessment
DocInfo - Ever wondered where your physician went to school? What certifications and licenses do they have? Have they had any disciplinary action taken against them? This site is a good place to start to review your physician.
Got Transition Six Core Elements of Health Care Transition 2.0 - Aligned with the AAP/AAFP/ACP Clinical Report on Transition, the Six Core Elements are intended for use in primary and specialty settings. Originally developed in 2009, this updated version incorporates the results of several transition learning collaboratives, an examination of transition innovations in the US and abroad, and reviews by over 50 pediatric and adult health care professionals and youth and family experts.
Got Transition – Transition Quick Guide: Take Charge of Planning and Managing your Own Health and Career Goals - Because the ability to manage one’s health and wellness is critical to going to school, learning, and transitioning into employment, planning your health and career goals goes hand in hand. The first step to making your career dream a reality is taking care of your health. This checklist provides information and resources about health insurance coverage, self-care, health care transition, decision-making, and career planning and management.
Health Disparities for Adults with Intellectual Developmental Disabilities (IDD) Make Inclusive Health a Worthy Goal - We know that people with intellectual and developmental disabilities have a higher rate of co-occurring physical disorders, such as epilepsy, chronic constipation, obesity, vision impairment, hearing loss, diabetes and Parkinson’s disease. They also have higher rates of mental health conditions, such as anxiety, schizophrenia and depression. For more information, see eParent.com online article here: https://www.eparent.com/education/health-disparities-for-adults-with-idd-make-inclusive-health-a-worthy-goal/
Health-focused Transition Planning Tool for Youth with Disabilities and Their Families - See PACER’s newest NPCTE publication designed to help transition-age youth with disabilities and their families plan for youth to assume greater or full responsibility for their adult health care. It is recommended that parents and youth complete this checklist together. Each section can be discussed and completed separately.
Health Transition Planning and the Individualize Education Program (IEP) - The purpose of special education services is to ensure that children with disabilities have available to them a free appropriate public education designed to meet their unique needs and prepare them for further education, employment and independent living. A student’s elementary education provides the foundation for achieving these goals. Transition planning questions can help parents determine what kinds of health-related goals and activities should be included in their son or daughter’s IEP and transition plan.
National Center on Health, Physical Activity and Disability (NCHPAD) - NCHPAD is a public health practice and resource center on health promotion for people with disability. NCHPAD seeks to help people with disability and other chronic health conditions achieve health benefits through increased participation in all types of physical and social activities, including fitness and aquatic activities, recreational and sports programs, adaptive equipment usage, and more.
NCSET - What does Health Have to Do with Transition? Everything! - Adolescence is a time for dreaming—for youth to imagine and set a course for the future. High school students naturally spend time imagining the future—if and where to continue their education, to find a job or pursue a career, to move away from home, or to start a family. The Individuals with Disabilities Education Act (IDEA) includes a process to help youth with disabilities turn their dreams into reality. This Parent Brief provides information on the benefits of and strategies for including health in the Individualized Education Program (IEP) process.
NCWD’s A Young Person's Guide to Health Care Transition - Taking charge of your health care transition goes hand in hand with helping you achieve your career and life goals. Managing your health and wellness as a young person is the first step necessary for going to school, transitioning to work, and living the life you want. To make your dreams and career goals a reality, start learning about your health, health insurance, and health care transition planning at a young age. Make it a habit to manage your health and well-being as a young person, and you will carry this skill throughout your life.
PACER Center - Transition Planning Information for Physicians to Share with Families - Transition planning is a process that occurs as teens develop and become young adults and learn to function more independently. It is a time of realizing potential, developing a sense of self, and functioning more autonomously. Transition can be difficult. Youth with special health care needs (YSHCN), including those with disabilities, can find this time challenging. Many transition areas will require the learning of new skills that take time, practice, and adaptations to be accomplished.
Partnership for Inclusive Health – Implementing policy, systems, and environmental changes that increase access to physical activity, healthful food, and health weight management.
Supporting Students with Mental Health Needs Transition to High School - Recently, schools have begun to play a larger role in supporting students with mental health conditions. As a result, students with mental health disorders, particularly those identified under IDEA, now have increased access to transition services specific to their mental health needs leading to more positive outcomes. This “Quick Guide” from the National Transition Technical Assistance Center highlights research, resources, and recommendations on supporting students with mental health issues in secondary education.
Taking Charge of MY HEALTH (Families) - As a parent, sibling, or other caregiver, you are in a unique position to guide your family member in many of the key areas of health transition. Each topic provides information about available resources.
Taking Charge of MY HEALTH (Teens and Young Adults) - Learning to be more in charge of your own health care is part of being more independent in your life. These topics will guide you through learning new information.
Transition Health Plan for Youth with Disabilities and Their Families: Check List – National Parent Center on Transition Employment created a form to help transition-age youth with disabilities and their families plan for youth to assume greater or full responsibility for their adult health care.
Transition to Adulthood: A Health Care Guide for Youth and Families Provides people with people with disabilities and their families with information on how to choose a source of health care coverage, create a health care support network, integrate health care transition goals into their educational plans, and manage their health care. It includes useful guides and worksheets for keeping track of health care records, making doctor's appointments, and talking to doctors about health concerns.
Looking for medical apps? See our section on assistive technology